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Sensitive Data Workshop
|Sensitive data workshop|
|Let's meet at: 14:00 - 18:00, Room: Sagres | 22 Jan 2018 and 09:00 - 12:30, Room: TBD | 23 Jan 2018|
|Session Chair: Francesca Maria Iozzi, UNINETT|
You can't miss it if you are a researcher who deals with human health and genetics data, biosample data, and other forms of sensitive data as well as if you are a service provider handling personal sensitive data, sharing sensitive data for research purposes in European wide projects, aiming at exploring the enormous research potentiality provided by the combination of open and restricted data.
Nowadays data are collected and stored in unprecedented ways, thus enabling innovative investigations. In this digital data era, the Open Science paradigm together with FAIR principles provide scientists and technology providers with a new vision and methods for enhancing their research by fostering the cross-disciplinary access and (re)use of data and data technologies. Thanks to the data explosion, innovative research can now easier be explored also in the field of medical, social and environmental sciences, for the benefit of the world-wide population. But this research often includes personal or sensitive data that must be handled with consideration of the legitimate right to personal privacy. The GDPR is now setting the stage for accessing, sharing and processing of sensitive personal data in Europe. Many projects have developed legally compliant solutions to deal with using sensitive data for research. Several strategies have been adopted locally to comply with national privacy regulations. But there is still the need to implement policies and the technologies that effectively allow cross border, inter-disciplinary research on personal sensitive data.
By collecting the experience of several research communities, we will assess the requirements and the technological measures adopted in projects dealing with clinical studies, video and audio based social studies, medical imaging, sensor based and social engineering-based investigations. Questions related to policies for federated identities, anonymisation, ethical codes, security measures with regard to providing access and sharing of sensitive data across borders will be addressed. The ultimate goal is to define a technological and policy framework to enable the processing of personal data collected from different sources and disciplines, including clinics and social media, in combination with data from traditional openly accessible sources, such as climate and environmental data. The workshop is promoted by the EUDAT Sensitive Data Working group, a discussion arena established in 2016 to address the challenges related to the integration of the sensitive data solutions into e-infrastructure funded on the concept of Open Science. The workshop is for researchers, data scientists and technology service providers that are willing to explore the research possibilities opened by the jointly processing of health records, real world data, sensor data, social data, environmental data across borders.
DAY 1 (22/01)
14:00 - 18:00
Break - 20 minutes
19:00 Workshop Dinner
Break 30 mins 11:00-12:30
Break 5 mins